Endure24 challenge to fight fatal syndrome

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More than 30 people will forgo sleep to compete in a 24-hour fitness challenge at CrossFit Manly Vale this October to raise research funds for local medical charity, the Sanfilippo Children’s Foundation.

Participants will work out for 24 consecutive hours from 6th-7th October. The no- sleep aspect of the event, aptly-named Endure24, is particularly poignant to the parents of children with Sanfilippo Syndrome, as children with the neuro- degenerative condition experience extreme sleep disturbance.

“It is designed to replicate the experience families face that have children who require around the clock care,” explains Virakone Sengchanh, the coach and owner of CrossFit Manly Vale.

It is expected that participants remain awake throughout the 24-hour challenge. Workouts will be released every hour on the hour for 24 hours. Some will be short 15 minute sequences; others will go for 45 minutes to one hour.

Sanfilippo is a rare genetic condition that causes fatal brain damage in children. It’s referred to as a childhood disease as most patients never reach adulthood. Life expectancy for children with Sanfilippo is typically just 12-20 years.

The Sanfilippo Children’s Foundation was formed in 2013 by Freshwater mother Megan Donnell following the shock diagnosis of both her children, Isla and Jude Donnell, with Sanfilippo.

Mrs Donnell has herself had many sleepless nights, working tirelessly to help bring a pioneering drug trial to Australia after partnering with a US biotech, Abeona Therapeutics.

For more information, to donate or sponsor a Endure24 participant visit www.sfsuperseries.com.au

For more information or to make a donation visit: www.sanfilippo.org.au. You can also follow the foundation on Facebook, Instagram and Twitter.