Support Sanfilippo Children's Foundation at ICMS
Sumptuous Sounds is a unique series of dining and music events hosted by the Sanfilippo Children’s Foundation to raise awareness and research funds.
This is the third event and last year Sumptuous Sounds headed to the International College of Management Sydney, and featured the music of local cover band, Red Carpet Ride. This generated $41,000 for the foundation with 180 guests taking part in the exciting garden-themed event.
This year’s Sumptuous Sounds returns to ICMS with a Havana Nights/Cuban theme featuring cover band Martini Club, which offers a sexy fusion of Latin percussion, house, funk and disco.
The vision of the Sanfilippo Children’s Foundation is to fund medical research so a cure can be found in time for children battling Sanfilippo Syndrome today and for those born with it tomorrow.
Sanfilippo Syndrome - also known as Mucopolysaccharidosis III or MPSIII - is a rare, genetic condition where babies are born seemingly healthy but progressive damage to the brain and central nervous system result in gradual degeneration of all function and early death. It’s referred to as a childhood disease because most patients never reach adulthood. There is currently no treatment or cure.
The Sanfilippo Children’s Foundation funds critical projects that are focused on halting disease progression, repairing damage caused by the condition and improving the quality of life for children battling the condition.
Sumptuous Sounds has been created by a group of professional women all touched by the Sanfilippo cause, and they selected the foundation due to the local Northern Beaches community connection with the Donnell family whose children, Isla, aged nine, and Jude, seven, both have the condition. •